Here you can see the hyperacusis testimony of Will, a 40-year-old man who after receiving the covid vaccine suffers from tinnitus and hyperacusis.
Thanks to this testimony you will be able to understand how hyperacusis changes your life from one day to the next, to the point of losing relationships with friends and family.
Likewise, you will be able to see how sound therapies have turned out for him, even visiting one of the best professionals in his country.
β· Testimony Hyperacusis after Covid Vacccine πγ Hyperacusis in London γ
Will
I am a 40 years old male. One year ago, I decided to take the covid vaccine (Pfizer). I experienced the usual temporary side effects, such as a painful arm and feeling slightly unwell for the first few days after the jab. Within a week, I noticed strange things were happening with my hearing. I was hearing sounds when I would listen to electrical items (like the buzz of an oven or the washing machine). When I turned on the tap, there would also be a new sound I could hear. I have had mild tinnitus for several years previously but this was different. I then started to notice the tinnitus was getting much worse at night and I could no longer sleep through it. When I started to go out in the day time, all the sounds seemed too loud and I wanted to escape from them. I next noticed that my ears were beginning to really hurt, not just from sound but all the time.
I spoke to my ENT doctor who was not much help. My audiogram was basically normal and all other tests seemed fine. I was at first reassured and hopeful but the very difficult symptoms continued on for months. It made me realise that the damage done was probably to parts of the auditory system that we can not see or image or test. No one really knew what was going on with me and could help.
“I decided to see one of the best audiologists in my country. This made me realise how little we know about hyperacusis and I believe that their advice and treatments actually made me worse. The audiologist made me wear ear level noise generators for hours each day to try and desensitize the hyperacusis, but this only made my condition worse.”
β Will
I decided to see one of the best audiologists in my country. This made me realise how little we know about hyperacusis and I believe that their advice and treatments actually made me worse. The audiologist made me wear ear level noise generators for hours each day to try and desensitize the hyperacusis. However, this only made things worse and the tinnitus got louder and louder. I continued to struggle with the hyperacusis. The audiologist also told me that normal sounds cannot harm me and there are no pain receptors in the hearing parts of the ear, implying that any set backs must have a psychologist origin. I realise now this is not true and the most recent research in hyperacusis is proving these common myths about the condition to be false. There are newly discovered pain receptors in the hearing parts of the ear which may provide an explanation as to why people are experiencing pain. There is also no good research as to what happens when someone experiences a set back from sound even if it is only low or moderate sound. Evidence is starting to suggest though that physical changes are happening in the auditory pathway hence it is not good advice to simply tell all hyperacusis patients that normal sound can not hurt them β it is possible.
I have been suffering from severe tinnitus and hyperacusis for more than a year. I lost friends and family. My day basically consists of living quietly in a room waiting for my ears to recover. The frustration and hopelessness of having these problems has been perhaps the greatest challenge of my life.
It has been over a year now I am suffering with severe tinnitus and hyperacusis. I have not worked at all during this time, lost friends and family, and my day basically involved living in silence in a room waiting for my ears to recover (who knows if they will). I have made many mistakes managing this condition in the first year and the advice I was given by supposedly top doctors and audiologists has been terrible out dated advice. There is a desperate need for more research to help hyperacusis patients. I believe if I had been properly warned about avoiding set backs, that normal sound can cause problems and been told to push my tolerances very slow I would have made good progress. As a result, I am now the worst I have been. It is basically up to you to do you own research and figure out how best to manage this condition which is horrible because we are not doctors or audiologists. We are not skilled at researching and looking for answers. This is what we expect of the people looking after us like doctors and audiologists. The frustration and hopelessness of having these problems has been perhaps the biggest challenge of my life.
I try to maintain hope that I can still improve and get back to some kind of normal life. I hope with very slow desensitisation, medication to calm down nerves and avoiding set back, I can return to something close to my old life. Unfortunately, there are really no guarantees and the best I can do is keep trying and going using the best techniques to get me better.
Maybe you are interested
Do you have hyperacusis and want to share your case?
Fill out the following form.
Help Understand Hyperacusis with your History